Wednesday, December 11, 2013








Zoee is 2 yrs old here and she wasn't so sure of the situation.  Took this picture at Tom's Farms where Nicolle works.  Santa was a professional Santa and so was the photographer.  The photographer shot 77 images and put them on a flash drive for us to take home and develope our own pics.  All for just 10 bucks with Nicolle's employee discount !  Otherwise it would've been 30.  Great pictures !!!!



We visited the Grand Canyon for Thanksgiving 2013.......so thankful for everything in life.

Shanthi, the National Zoo's Musical Elephant, Plays the Harmonica!

Dancing Baby Elephant plays harmonica

FIRST HARMONICA LESSON RIGHT ON STAGE WITH JP ALLEN

Saturday, December 7, 2013

Monday, September 30, 2013

Orange County Tremble Clefs "Stand By Me"

My singing group called the Tremble Cleffs of Orange County California.  We either have  Parkinsons or we are a care partner in the choir.  I am in the back to the right of the lady in the red sweater.  We will sound louder when we are "miked" for the concert coming soon.  I have a harmonica solo.  Woohoo !

Sunday, September 29, 2013

Marcelo Reyes SKYDIVES!!!!

THIS IS MY 18 YR OLD GRANDSON JUMPING OUT OF A PERFECTLY GOOD AIRPLANE TO CELEBRATE HIS 18TH BIRTHDAY !  whoooohooooooooooooo !!!!!!!!!!!!

Saturday, September 28, 2013

Last Minute Christmas Pop Up Card Tutorial




I do paper folding (Origami etc.) for Parkinson Disease  therapy and this is one of the projects I did thanks to a very generous artist Peter Dahmen Papierdesign.  You might want to try it.  Totally fun !!!!

Bill Geist

I like the show called CBS Sunday Morning and there is a reporter named Bill Geist on it who every time I saw him he appeared to be tremoring a little bit.  I looked him up and as suspected he does have Parkinsons now for over 10 yrs.  Here is a link to a great interview back in July of 2012 that he did  announcing his situation.

http://www.cbsnews.com/8301-505269_162-57465578/bill-geist-parkinsons-revelation-very-difficult/

Saturday, August 10, 2013

FOr Those Who Have Trouble Moving.........

A good friend sent this to me and I thought I'd post it.  I've been doing origami for almost 8 months and notice I fold best when my med enhances movement.  I can also fold when the side effects are kicking in but way slower and it feels like I have two left hands full of fingers that my brain can't coordinate.  Yes it can slightly frustrate but I just go with it, unwillingly of course, and put it down a bit until next time. 
Paul Smith is a typewriter artist with a serious movement disorder and I want you to see his work and the two videos on this site about him.  It is way awesome.  I will get frustrated less after watching and reading about Paul Smith may he RIP.
http://www.lifeinthefastlane.ca/awe-inspiring-typewriter-art-paul-smith/art

Tuesday, August 6, 2013

Baby Elephant Navann's Outing

This will get your happy neuro transmitters going..........

Friday, August 2, 2013

Richie Parker: Drive




Healing video about Ritchie Parker.  Do you dwell on what you can not do? 

Do What You Can Do

Fighting Parkinson’s, and doing what you can do Posted on August 2, 2013 by Howard Over the last couple of weeks, I have been discussing with people in coaching sessions about a renewed focus. My experience with Parkinson’s was that as my body was ready to be recovered, it was equally important for my mind and spirit to allow the recovery. I needed to release my mind from thinking about what I could not do anymore, and I needed to open my heart to get the dopamine flowing so my pre-Parkinson’s movement could return. I have told people to do what they can do, give thanks and gratitude for the ability to do those things, and to not dwell on what they cannot do. Some of you are having difficulty envisioning your recovery because you are looking at your current physical state and reviewing your mental list of all the things you cannot do as a result of your Parkinson’s. If you maintain that state of mind, even with healing yourself from deep inside, your mind will not release your body to move and your heart will not open to allow your dopamine to flow to support your movement — your self-fulfilling prophecy becomes “what you cannot do.” You need to change your focus. You need to do all of the things that you physically can do, and in each moment of doing, give thanks and gratitude for the ability to do those things. You will be surprised when you release your mind and open your heart how many things on the “what you cannot do” list become things you find yourself doing without even thinking about them. A calm mind with and attitude of gratitude goes a long way in your recovery. At the conclusion of this discussion on a coaching Skype yesterday, the person told me she was going to send me a video of an individual who embodied the concept of doing what you can do and not looking at what you think you cannot do. I am so inspired, I feel compelled to share it with you:

http://www.youtube.com/watch?v=qiLDMBDPCEY#at=13

Tuesday, July 9, 2013

Dancing Through Parkinson's performance 2012




My dear friend Kanna introduced me to Dancing Through Parkinsons in about 2011.
I found it to be very liberating mind, body, and soul.  Thanks to all involved and many blessings
to all.

Monday, June 24, 2013

More Stuff on Wheat Gluten Opening Pandora's Bread Box: The Critical Role of Wheat Lectin in Human Disease

http://www.greenmedinfo.com/page/opening-pandoras-bread-box-critical-role-wheat-lectin-human-disease

Here's and excerpt that is interesting and stands out.
WGA stands for Wheat Germ Agglutinin
Grains are rich in lectins

Each grain contains about one microgram of WGA. That seems hardly enough to do any harm to animals our size. Lectins, however, are notoriously dangerous even in minute doses and can be fatal when inhaled or injected directly into the bloodstream. According to the Centers for Disease Control and Prevention, it takes only 500 micrograms (about half a grain of sand) of ricin (a lectin extracted from castor bean casings) to kill a human. A single, one ounce slice of wheat bread contains approximately 500 micrograms of WGA, which, if it were refined to its purest form and injected directly into the blood, could, in theory, have platelet-aggregating and erythrocyte-agglutinizing effects strong enough to create an obstructive clot such as that occuring in myocardial infarction and stroke. This, however, is not a likely route of exposure and, in reality, the immediate pathologies associated with lectins like ricin and WGA are largely restricted to the gastrointestinal tract where they can cause mucosal injuries. The point is that WGA, even in small quantities, could have profoundly adverse effects, given suitable conditions. Ironically, WGA is exceptionally small, at 36 kilodaltons (approximately the mass of 36,000 hydrogen atoms) and it can pass through the cell membranes of the intestine with ease. The intestines will allow passage of molecules up to 1,000 kilodaltons in size. Moreover, one wheat kernel contains 16.7 trillion individual molecules of WGA, with each molecule of WGA having four N-Acetylglucosamine binding sites. The disruptive and damaging effects of whole wheat bread consumption are formidable in someone whose protective mucosal barrier has been compromised by something as simple as nonsteroidal anti-inflammatory drug (NSAID) use, or a recent viral or bacterial infection. The common consumption of both wheat and NSAIDs may suggest the frequency of the WGA vicious cycle. Anti-inflammatory medications, such as ibuprofen and aspirin, increase intestinal permeabilty and may cause absorption of even larger-than-normal quantities of pro-inflammatory WGA. Conversely, the inflammation caused by the absorption of WGA lectin is the very reason there is a great need for the inflammation-reducing effects of NSAIDs.

Sunday, June 23, 2013

What Is Gluten Ataxia?


Gluten Ataxia is worth thinking about in that it is a newer thing than Celiac that needs more study.  It bothers me that it causes some symptoms very similar to Parkinsons.  I'm not saying I think it's a factor in PD but gosh eveything is so closely tied in our bodies and food is the most often assimilated thing we dump into  it that maybe PD is a spectrum of Gluten Ataxia.

" Likewise, some people experience an alarming loss of coordination when they eat gluten. This neurological disorder is called gluten ataxia, and many neurologists believe that anyone diagnosed with Parkinson’s disease ought to be evaluated for gluten ataxia. As with DH, people who suffer with gluten ataxia may not have celiac disease, but adherence to a gluten-free diet helps to relieve gluten ataxia."  This is a quote from a blog called " A Fork In The Road" http://www.glutenfreefork.com/celiac.html

 http://celiacdisease.about.com/od/GlutenAtaxia/a/What-Is-Gluten-Ataxia.htm 

I just love the internet don't you?

Sunday, June 9, 2013

Friday, May 31, 2013

Operation Skyknight

https://www.youtube.com/watch?v=V_JUqhMcPcc Published by LASD May 1 2013. Excellent historical documentary about the program me and my husband and many great friends and deputies participated in over the years.

Wednesday, May 29, 2013

Pole Walking

Having heard that a friend just finished a Parkinson's Boot Camp in Arizona recently where she experienced pole walking and after researching it's benefits for everyone especially with gait and balance for people like me, I decided to get my hiking poles out and give it a whirl for 30 minutes in the neighborhood.  It turned out to be fun and the most immediate benefits were improved sleep, balance, and energy.  I've only been doing it for three days now.  Here is a site that tells about it if you are interested.

http://www.keenfit.com/about-poles/how-to.asp

Thursday, May 23, 2013

Origami and Parkinson's Experience

I started origami in Jan 2013 and find many benefits for the Parkinson's Experience.

This is my post to Origamimaniacs site:

 I started Origami in Jan. 2013. I have a movement disorder called Parkinsons and find great health benefits doing this beautiful art. The most important is hand-eye coorination and patience with myself, self-fullfilment, less tremor,and I find I cannot ruminate about anything else that's going on in life. So it has a calming effect also. All great for someone with a disability.

You might enjoy this cool site to browse on the subject.

http://origamimaniacs.blogspot.com/2011/08/benefits-of-origami.html

Moving Meditation and Parkinsons Experience

I rely on moving meditation like Qigong and Taichi to center myself.  It helps with the Parkinson's Experience overall. 

Here is a good link to watch.

http://www.youtube.com/watch?v=u4IqdvCuWWs&feature=share&list=PLU7UoycZjkBg7M3mHrck2ZITiIge2S-1y